Outfit Of The Day from my lovely future Daughter-in Law.
“The hair was styled by sleeping on it, and my makeup was created entirely by taking the makeup of the day before, and rubbing my eyes a bit.”
That’s EXACTLY the sort of ‘on-trend’ relationship any young woman should have with clothes & makeup!
We mature ladies do need a bit more input to look human though…
I’ve made a decision. On reading through various Tweets & Blog posts & comments I’m noticing that my typos & numb hands & general brain mush are happening, not only, more frequently but more & more unnoticed by me. Despite reading through, I seem to be incapable of spotting mistakes which would generally horrify me!
I am, in the words of Spud in Trainspotting, a bit of a perfectionist you see.
Now all of this could distress me, depress me & piss me off BUT, especially on here, I intend to embrace it. Not because I don’t know any better – my spelling is exemplary – but because it serves as a record of how my MS is affecting me; physically & cognitively.
MS isn’t just about walking funny or being in a wheelchair. It’s about pain, fatigue, ‘altered sensation*’ & impaired concentration. I can’t deny it & I can’t fight it but I can accept it.
*Altered Sensation is a term as nebulous as saying that a deep, dark cave has ‘altered light’!
So, if you spot a typo or occasional incoherence on here, let it slide. Just think “oh Trudes is having a bit of an off day”. I may have typed something in haste or with passion or, most likely, have a bit of Cog Fog*
*just learned that one today! Sounds less unpleasant than Brain Death.
Sometimes, indeed increasingly often, you simply cannot rely on those who should know better to do the right thing. People in power are inherently selfish & only seem to show ‘altruism’ to those who a) agree with them & b) bung them a few million quid for their Political Party Coffers; basically those who don’t really need or deserve a leg up. Today, the 9th of January 2012, is really quite momentous in terms of People Power; The Big Society. Today sees the publication of a report called Responsible Reform which exposes just how a government ‘consultation’ on something really incredibly important is a complete sham. Our Leaders want to save money to reduce our Economy’s deficit which is not an unreasonable thing to do. Tax avoidance reduces the Treasury Budget by BILLIONS so yeah, let’s start with that. Actually, far from starting with the big bucks, it’s the little guy who’s getting it. You can take £1,000,000 from 1 person or you can take £1 from 1,000,000 people; people for whom that £1 might make the difference in being able to eat today or to travel to work. In face, let’s make it more than £1 per person & let the people we’re taking it from be DISABLED! Crikey! What an absolute wheeze…
Now, like any Democracy, we can’t have folk running around doing whatever they like so we have ‘Consultations’ about how these savings can be made & what impact that will make on both the Economy & those
who are being robbed who are negatively financially affected. These Consultations have rules about the length of time needed to gather opinions & facts & statistics. Rules which, seemingly, are now ‘optional’.
The result of these Consultations are used
willy nilly wisely & with gravitas to create government Policy & Law. Well, you’d think so eh?
So, back to today & Responsible Reform; http://dlahelpgroup.com/downloads/Responsible%20Reform.pdf If you believe in democracy & altruism & decency & how, should you or your loved ones become disabled, this country will help care for you, then read this. Read it until it sears into your brain. I certainly didn’t know that I would be affected by Progressive MS or give birth to an Autistic child and you certainly don’t know if or when Disability might affect you in some way.
What you CAN know now is that this Government will not care. It will doubt you & sneer at you. The Media will label you & point & laugh & call you a LIAR; a SCROUNGER; a CHEAT. It has taken a group of Disabled Campaigners to do the job of a worthwhile Opposition. People who are themselves at the mercy of these decisions. Decisions made, as shown in the report, DESPITE the majority of those ‘consulted’ not agreeing to them AT ALL.
Be outraged by this. Be angry. For all our sakes, DO something about it; Tweet about it, Facebook it, tell your MP or any member of the House of Lords. Don’t let this happen or, once day, it could be you Spartacus…